New music video – Lullaby for Ondine

With great pleasure we would like to share our second music video. “Lullaby for Ondine” is a very special song, because the rhythm is played by the medical equipment of a CCHS patient (pulseoximeter, oxygen concentrator, ventilator, diaphragm pacers).

It was written specially for us by Sebastian Wypych to the words by Jacek Cygan, beautifully sung by Ania Karwan accompanied by Michał Salamon playing on piano. We strongly encourage you to watch this video and share it with as many people as possible, so that we can raise awareness about CCHS.

From album: : ONDINATA.Friends for Ondine. Polish version available on album: ONDINATA. Songs for Ondine. All proceeds from sales of the album will go directly to support research for the cure for Ondine’s curse (CCHS).

LULLABY FOR ONDINE

Jacek Cygan – lyrics

Sebastian Wypych – music, double bass, electronics, percussion

Ania Karwan – vocal

Michał Salamon – piano

Arad Emamgholi – daf

Leo Hueckel – Śliwiński – breath

Oliwka Zielińska – breath

Zdzisław Zabierzewski – translation

Marian Lech – recording, mix

Magdalena Piotrowska – mastering

In this recording you can hear sounds of medical equipment of a CCHS patient (pulseoximeter, ventilator, diaphragm pacer, oxygen concentrator)