born 2019
Bartek enjoys playing with his siblings and his favourite fluffy duck and the plug for the probe (which he always carries anyway). He dreams of breathing without ventilatory support.
https://barteklapieoddech.pl/
Fundacja Pomocy Osobom Niepełnosprawnym “Słoneczko”
National Court Register of Associations Number (KRS): 0000186434
Specific reference: ”450/C Bartłomiej Czernek”
selected tracks from the album
If you don’t need our album, but still want to support our Polish CCHS Foundation? You can make a donation to support medical research on finding the cure for CCHS. Read more about the research.
You can make a money transfer directly to the account of our Foundation:
Polish CCHS Foundation “Lift the curse”
IBAN: PL 57 1140 2004 0000 3802 7917 8525
BIC/SWIFT: BREXPLPWMBK
or donate via Paypal:
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